Ankylosing Spondylitis :: Feeling Like That Of 90 Year Old?
Jul 28, 2015
I am 45 year old female, since my late teens I have suffered from what I always thought was sciatica, I would get bouts that could last weeks and although no proper diagnosis, DR agreed with me that was what it could be. Ive managed that through the years (and believe sometime the pain has been excruciating) with various pain relief concoctions. I would also always have an aching back, and if stretch too far its feels like something in lower my back has been ripped. As a florist for nearly 30 years I put most of my aches and pains down to the job (floristry is a hard, cold and very physical job).
Also at 19 I had my first bout of iritis, I've had it four times now in all, the last time being in 2009. The eye doctor I saw though it would be a good idea for me to have a blood test as he said iritis is a symptom of something else.
So I had the blood test and it showed the HLA marker, I was then sent to a rheumatologist who took an xray, told me I was hyper mobile and that was it...
To cut a long story short, I have been back and forwards to the docs since then. Various referrals to physio who give me exercises (which I do do) and then dismiss me. My legs now hurt sooo much, all the time in fact, I'm not unfit and not overweight (I did leave the florist 2 1/2 years ago) and although work from home, I walk the dog three miles every day. But this is more than aching legs - I can't get up the chair and as for getting up from the floor, forget it. I have to hold on when I go upstairs and lower back is constantly aching
My body feels like that of an old lady.
Incidentally, I developed a frozen shoulder in January and a lump at the base of my neck which physio said was down to posture!!!
Was back at the docs today who finally said she would refer me again as its sounds very much like AS
Does anyone have any tips on how I can get them to take me seriously, I have only ever had one x ray in 25 years but I just can't cope with my body feeling like that of 90 year old.
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I'm 30 years old and have suffered back pain and knee pain to an almost debilitating stage and the fatigue can be immense. I've had this since I was 17 ish. Quite often out of nowhere my knees will 'pop' or 'crack'. This can be when I'm walking, starting to sit, try to kneel or even stand still! Sometimes the pain is horrendous. I've also noticed my back has become less flexible over time (in fact my whole body). My calves feel heavy and my feet hurt like crazy. I find it hard to sit for very long without my spine hurting. My wife has tried massaging my back, but she hates it because she sees the pain I'm in. I have been to a Chiropractor, but I seemed only to get worse! I have been to the Dr and they seem to only want to look at one thing at a time rather than collectively. However, I do get some violent jolts or shakes which has been diagnosed as Myoclonus. It has been suggested by one Dr that I may have Fibromyalgia, however, I read through the literature and although some of it sounds familiar I'm not so convinced. By chance I then read an article in my local newspaper drumming up awareness of AS. I'd never heard of this before so I googled it and I would say the symptoms described struck a chord with me. I'm yet to discuss this with my Dr. Has anyone else found the same awkwardness in regards to getting to the bottom of what their suffering from? I'm convinced my mother also had it, although it was never confirmed. I can remember how much of a struggle daily life was for her. One Dr even tried telling her she was a bored housewife and that she needed to get out of the house more! Unbelievable. Anyway thanks for reading this, just trying to build up more of a picture of what it is I have :'
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Hi. I have recently been diagnosed with spondylitis and I also suffer with spondylosis. I was in a lot of pain, so took myself down to A&E. A doctor came to see me and sent me off for an x-ray. When the x-ray came back I was told I had spondylitis. I asked was there some kind of mistake as I already had spondylosis, I was told no, this was just something else to add to my list. I was gobsmacked to say the least. This bout of pain hahas now eased. I have done some research on this, not realising that the pain would come back. I would like to know how other people cope with the pain?
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I'm 34 years old diagnosed with as last year after over 10 years of agony with no one listening. Finally I got the diagnosis and my rheumatologist started me on enbrel last Nov. The change was unbelievable. Since then I have put on 21lbs even though I have improved my diet. For the last few weeks pain has been creeping back in and I've started using co dydramol again. I've also started with chest pain (not the as pain I had before in my chest). This has resulted in having ECG and being put on aspirin and statins. I've also had an echocardiogram today as there were minor abnormalities in my ECG. Wanting really to talk to people on enbrel. Have they had any of these side effects? Did the drug stop working as well at any point?
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I have recently been diagnosed with AS. At my last hospital visit the consultant gave me a self assessment form about my level of pain and mobility. I have to complete it again in 2 months when I go back to see if there has been any change - the consultant did say it was very unlikely there would be, but there is a process to follow. Anyway, she said when I return I could choose between Enbrel and Humira, and gave me some literature on them both. I understand that everyone is different, but wondered if anyone else could comment on the highs and lows of both drugs. I am 44 years old, and the main problem is in my neck. I can look left and right, with limitations, but cannot tilt my head to the side or look up. The anti-inflammatory drug that has so far worked best for me is Naproxen. Also do you have to continue with painkillers or are the injection a replacement for the anti-inflammatory drugs only.
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I have read on several message boards lately that there could be two new anti-tnf drugs coming to the market soon. Would that make the total 5? If so then does anyone know when these will be available to the UK market?
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Has anyone suffered a bad reaction following a spinal MRI scan?
I suffered (and am suffering) terrible muscle pain and muscle weakness following an MRI scan one month ago.
My scan was standard (i.e. without a contrast dye being injected into the blood - I know the dye sometimes causes problems) and I have so far found two people who have suffered a similar reaction.
It feels as if the scan has "stirred up" my immune system to produce inflammation in muscle and joints in my right leg and right arm.
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I have been diagnosed with Spondylitis in the top of the neck it's not the tightness or the pain it's the way it's affecting my balance! I also have a inner ear problem so not sure what is causing the Vertigo or could it be a bit of both can anyone out there help before I go crazy thanks!
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I am new to this forum so I apologise if I am doing things wrong. I have have AS for many years, well controlled with NSAIDs but plantar fasciitis is causing me a lot of pain at the moment. Does anyone have any ideas about the best sorts of treatment? Most web sites seem to concentrate on PF caused by running, being overweight etc rather than AS? If this has already been discussed, could someone direct me to the relevant threads?
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After a two year battle with every drug going and being so terribly ill with AS my consultant has decided we need to move onto anti TNF after trying everything else with very little or no success.
Can you please tell me everything you know about anti-tnf. Was it is successful? Did it give you a life back? Does it stop the pain? Does it help with the fatigue? I am so worried about trying it, but need to urgently do something, as quality of life is very low and nothing else seems to work.
I need both my hips replaced, does anyone know if it helps with hip pain?
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I wanted to hear some of your experiences with pain management doctors. I have been involved with pain management doctors (usually anesthesiologists that have branched off into this specialty) for about 5 years now. Frankly I continue to see them since they have provided me with hydrocodone during that time and this does help to some degree. However, I have also tried many of their various treatments. I have had epidural injections, nerve ablations, trigger point injections etc. etc. Most of the results have been very minimal if anything and any results that I did get certainly didn't last very long at all. I was wondering if it is very common for people suffering from AS or one of the other related inflammatory diseases to seek help from pain management doctors. Have any of you actually been helped to any significant degree by them? For the most part I don't believe they really understand the inflammatory process. They ask me where it is hurting and when I tell them everywhere in the lower back they look at me like I'm just a hypochondriac. They assume that the pain has a specific source and their treatments should be able to fix it. My pain is severe but cannot be localized to one source. Have any of you worked with pain management people and has your experience been different?
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I'm started bending forward due to AS, my neck has also bent slightly rightwards. Will back brace assist in keeping my posture.
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Does anyone else have flare ups of a sore throat and sore oesophagus, the Dr thinks it's acid reflux, ppi's aren't doing anything, now being tested for h pylori bacteria, but can't help thinking that it may be connected to my ASR
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I am a vocal coach, and around about 30 students a week. I have developed Spondylitis in my hips and my Dr prescribed Enbrel after a 2 month period of taking large amounts of Aleve and cortisone shots in hips and sacroiliac joint. I am terrified of the side effects. I teach voice all day and that is my income. I am afraid of getting sick and losing work but the pain from the arthritis can on some days be very depressing. Feel between a rock and a hard place.
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I'm only 17 years old. I have felt the way i feel now for months. I am not pregnant before anyone suggests that!
I suffered from a disease/illness where my glands swelled up til they were huge and you could clearly see them. I had a fever all day, i would go cold and the hot, i had no energy at all and was generally sick! The doctor gave me some antibiotics and it cleared up.
Ever since then i have not been myself. I feel sick at some point during the day, i constantly have a weird feeling in my head, its not pain as such, but like a numbing feeling and irritation. I feel like im going to faint all the time, im weak and very tired, i also get chest pains from time to time & my breathing is rubbish, its hard to breath at times, i generally feel like im dying
I have had countless blood tests and all of them showed nothing!
This totally upset me because im frustrated, i just want it to be over!!
The doctor told me just to have lots of water and exercise.
My family were convinced that i suffer from anxiety and panic attacks!
As i had a panic attack due to the fact i felt so ill i thought i was dying!
It wasn't just happening to me for no reason the attack.
so they took me to the doctor where he told me my symptoms were that of anxiety and panic attacks so he gave me some tablets to take.
But i still feel the same!!
I do not believe that i have anxiety
I am sick if people believing that is what it is!!
.......
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I am slightly worried, but last thursday i was told i had asthma and i was given 2 inhalers, but since then my breathing has gotten worse, i suffer from chest pain and a "that's not right" feeling in my chest, and i am soooo fatigued and have no energy and now have lost my appetite :-(
and also feel sometimes light headed, I have been given a blood test but results aren't out yet and i hate waiting also i am really worried which make me worse and i have some back pain as well.
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I was diagnosed with cervical spondylitis when I was 27 ( had a severe fall when I was 16 yrs old...fell 2 stories), am 48 now and moved to Wales almost 2 yrs ago from South Africa and since being here, my pain has increased in intensity. Used to get steroid injections and am aware that I won't get that here in the U.K. I now suffer extreme nausea due to the pain and can only dry retch, as the valve below the oesophagus was tightened yrs ago and now prevents me from throwing up. I would appreciate if others with this condition could tell me what the maximum dosage of Ibuprofen one can take. Taking the normal dosage (2) does not alleviate the searing pain or spasms.
I am also very confused. After x-rays, all dr,s have said cervical spondylitis and not cervical spondylosis. Been told that I don't have arthritis and yet this is not ankylosing spondylitis, which 1 dr said it was..(he never saw the x-rays)...really confused even after numerous x-rays and dr,s. I am almost on the verge of giving up hope of getting effective painkillers from dr,s here. Do the exercises, use heated neck bags and nothing much helps, especially when I get a flare up.
Need to know if increased dosage of Ibuprofen would help.
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I have had a low GFR for a year now but recently it has went down to 51 and I'm passing urine a LOT more often and feel I've a pinching pain under my right rib. Does anyone have any suggestions?
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I am a 19 yr old guy, currently 5'5 1/2" and around 125 lbs (my weight fluctuates about 125-130 these days). I hit puberty around 14, but I have been my current height for 4 years, have weighed between 110-140 in that time, and have not growing at all in height. I currently have a lean 28" waist, 35" hips, 35" chest, and 14" neck. I have a bit of armpit hair, thigh hair, navel hair, and leg hair, but it's somewhat sparse and not really thick yet. I also have the peach fuzz on my face, and it's starting to get darker on my jawline. My Adam's apple is also getting noticeable.
My dad is 5'6" and 200 lbs. He claims that a lot of it is muscle and that he only has "10 pounds of fat on him", but that's a statement more applicable to me; he is quite overweight. He says when he was my age he was 170 lbs and "not fat" -- I know for a fact that I would look really fat at 170 lbs. My appetite was really voracious for a couple years but has slowed down; though I still get days where I can almost clean out an entire refrigerator, they are getting more rare. My sister is 5'7" and 150 lbs, and somewhat chubby. My mother is 5'3" and about my weight.
I still look youngish in the face, though my jaw has become more geometric and square lately. I don't know whether I should "try" to grow by say, working out a lot, sleeping a lot, and drinking lots of milk + excess calories, but I feel like it might not even work. Is it likely my growth is almost done? Can/should I get a bone scan to determine it?
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I've been suffering with hyperthyroid and TED for over a year. My eyes are extremely dry. I can't sleep at night because they constantly run water and I find that I'm isolating myself from the world because of my weight gain and eyes that get as large as quarters at times. I was at a football game this past weekend when a stranger walked up to me and said every time the horn blows your eyes get as big as quarters it really comical to watch. I was mortified and felt that everyone was looking at me. I went home cried until I couldn't cry anymore. I guess I should have told her that I have a disease that causes this but at the time I was speechless. Has anyone else experienced this and what if anything have you done about it?
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im married to the woman i love.... i love her very much we have an healthy relationship morally but....... we never had sex ....... we hug kiss whatever but no sex at all what could be the reason ?....... please someone help... i love her n i've talked about this to her but she said that she doesn't like .... can anyone say why would she not like cause she says there's no reason but juz pain i don't like
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