Addison's :: Craving For Salt And Always Thirsty
Feb 21, 2014
I'm wondering what the "typical" dose is for fludrocortisone? I've been taking .1 mg for past several years, but doesn't seem like it's doing anything. I'm thirsty all of the time, and am consuming liquids all day it seems ... and yes, I add sea salt to my water. Could it be that this gets worse the longer you live with the condition, and so may require more of the med to help with sodium retention? I'm clearly not retaining extra water weight as I'm extremely thin (87 lbs). My doctor doesn't seem to have a clue and just tells me to keep drinking water. I pretty much don't rely on doctors anymore with this condition. I've grown tired of educating them about Addison's/ Adrenal Insufficiency. So I figured I would ask here and see what others take and if anyone has had to increase their fludrocortisone.
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I have always enjoyed salty foods but over the past few years I really crave them all the time. Could it have something to do with my adrenal glands?
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I just LOVE salt, and sometimes I feel a bit shaky and if I eat something salty, I'm fine! I suspect this is an electrolyte imbalance, but no real idea. What's going on?
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Anyone craving beer? Or any alcoholic drinks?
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I'm always needing soda or something with caffeine
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I Been Craving Spicy Food Much. That's All I Use To Eat Before I Got Pregnant. I'm 14 Weeks And I'm Just Wondering Will Eating Spicy Foods , Snacks Etc Harm The Baby?
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About two months ago, I had mentioned to my personal trainer that I was feeling very tired with low blood pressure. This had been going on for a couple months, on and off every couple of weeks. He mentioned that it could be cortisol-related.
I went home and did a lot of researching about the issue and found that I matched a lot of the symptoms of low cortisol. I went in to see my doctor a couple days later. When I mentioned that I thought it was low cortisol, he said that the adrenal glands usually do the job and that it probably wasn't that. He tried to prescribe me anti-depressants which I declined, and then ran a few blood tests, along with an AM only cortisol test (it was about 11AM).
The test came back with a level of 17 mg/dL of cortisol taken at 11AM. However, he said my blood sugar was 54 which was very low. Also, my Vitamin D was below normal ranges. Some other counts were off, but nothing that really pointed to anything that could be causing what I was feeling.
I took a multivitamin for a few weeks. I had also been congested in the back of my throat for two months, so I went back to see the doctor if he could do anything about that. He determined it was a sinus infection, and prescribed Cefuroxime for two weeks to get rid of the congestion. I asked if that could help my fatigue to which he said it could help.
So I finished the two week round of antibiotics, and now it's two weeks later and I still feel horrible. Here's the main things that I am experiencing. I really don't feel depressed and feel like I enjoy life a lot.
- Inability to wake up for work. I wake up around 9AM, and feel like I haven't slept at all. I previously had to wake up around 5AM to get everything done in the morning
- Feeling of drowsiness through the morning, up until noon. Sometimes like today it will last all day.
- Extremely low blood pressure while standing. This starts around 2PM every day and lasts until around 5PM. I usually don't fall down and just black out, but recently I fell because after standing up and injured my knee.
- Fluctuations in appetite, I will eat a TON of food with out gaining any weight (5-6 meals a day), but I exercise a lot so this isn't super concerning. My weight is constant.
- Itchy red eyes when I wake up
- Exhaustion when sitting, feels like I should lay down but not low blood pressure
- Hypoglycemia, my blood sugar is really low in the mornings, and then again in the evenings before dinner. Between that it feels fine but I don't do regular testing on this to know for sure.
Also I am 20 years old male and a competitive cyclist. I eat very healthy foods (although a lot to keep up my activity). I live at a high altitude (7,400ft).
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I'm 38 Weeks Pregnant With A Girl Craving Chocolate Cake... HBU? How many weeks are you What's your craving as of right now the sex of your baby?
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I'm not the type that does drinking but I've been craving a bloody mary so bad! Can it do harm to my baby if I only have 1? Im 11 weeks.
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I am 38 and have Hypothyroidism. I recently had a cortisol test and my initial results came back at a level of 210. I was told that the normal range was 150 - 650 ( or thereabouts ) and as my test was at 9am these levels should be much higher.
I have been refereed to see a hormone specialist but am just curious to know if anyone had an initial level of 210 at peak time and didn't have Addison's. Or, indeed they did have it?
Could it be adrenal fatigue? which is why I went to the drs as I read about on a thyroid website.
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My daughter is taking hydrocortisone for primary Addison's due to Pheochromocytoma. Does anybody know if she should be taking something to help prevent osteoporosis??
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What was your cortisol level when you were diagnosed with Addison's? I'm guessing it was 0.
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I was doing really well, and was almost to my goal of being able to fly again (my niece has a wedding in July, and I didn't want to miss it due to being too big to fly), when I started having this strange craving for Strawberry Splash gushers, and Ginger Ale. For the past three weeks, I've gone through two boxes of gushers a day, and a liter of ginger ale a day. Does anyone else have strange food addictions that set them back? How did you kick it?
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I am being tested for Addison's Disease and just received the below test results. I don't see my endo until 12/4/13, and wondered what the results might indicate. Any thoughts?
Historically I presented with low Cortisol and High ACTH.
* After a Dexamethasone Suppression test my blood cortisol was less than 1mcg (whatever that means)
* 17 Alpha Hydroxyprogesterone was 849
* ACTH Stim test results:
Baseline- 10mcg
30 min.- 13mcg
60 min.- 15mcg
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Curious if anyone knows what it means to have high sodium levels and Addison's disease? My sodium levels came back at 238 I've had more testing done but this one was the more extreme in numbers.
Anyone else have high sodium results?
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Could anyone advise me if reducing Mirt down from 30 mg will have any effect on food craving. 2 stone overweight which seems to be the norm. If I could lose half of it it would help.
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A few months ago my blood pressure plummeted-and recently I've been EXHAUSTED. I have to nap daily and have no energy. My blood pressure today at a GI appt was 75/62 the week prior it was 75/53. I've had several drs comment but I never really get noticeably dizzy as I've had dizzy spells on and off all my life. But with this utter exhaustion my GI said I should follow up asap w my primary dr.
Also, for years I've had upper left sharp stabbing pains-we've suspected my pancreas but scans are always clear.
Does this sound like it could be addisons? I'm not sure what else could cause this low bp (which is not normal for me)-I had my heart checked recently, was fine.
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I have so many Addison's symptoms, and in March my AM cortisol was 8.75, so low-normal. I was sure I would have a diagnosis after my ACTH stim test. Unfortunately, I've hit another dead end. Here are my results:
8am baseline reading - 12.82 ug/dl
30 Min after injection - 20.88
60 Min after injection - 24.44
I was stressed about the procedure to begin with. Then the nurse who drew my blood could not hit my vein and it was a very painful process as she continued hunting for it. It hurt so much I was almost in tears. This happened for the first two draws, and then I finally asked for a different nurse for the third draw. She hit my vein with no problems as most do since I have very prominent veins. I was so upset. Also, they had me walking back and forth between the lab and the waiting area after each blood draw.
Is it possible that my results were skewed by these factors?
I experienced an adrenaline rush shortly after being injected with the ACTH, and until about 5pm my heart was pounding pretty hard and I felt lightheaded. Is this normal?
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My daughter is 19. About 18 months ago she started having panic attacks, feeling nauseous and shaking and becoming quite distressed. After counselling and medication it became controlled. She still suffered episodes of shaking and feeling as if her blood sugar was dropping. She has had episodes of lightheadedness and passed out at work , being out for about 10 minutes. All her tests have shown as normal to now, however something is suddenly causing these events. She has had bp, eeg, fasting bloods- glucose and thyroid function, all normal. She is awaiting a 24 hour eeg now. I read about adrenaline crashes and Addison's disease recently and its connection with irregular periods, which she gets and Vitiligo, which she has a small patch of. Is it worth discussing tests with her GP? they seem quite happy to put her regular visits there down to anxiety though.
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My son ryan aged 8 has been diagnosed with addison's, this has only been 2 weeks, tell tale signs are skin pigmentation and black freckles, he was poorly but has picked up but reluctant to be very energetic and seems to be tired easily, as this is early stages not sure if this is normal maybe someone can advise, he won't walk so its car or taxis to everywhere, he also has heart murmur, we are still awaiting test results to see why glands stopped working,
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I have had everything check that my doctor can think of, but for the last few months a have been so thirsty. I have to chew gum or Suck on a hard candy to get some relief.
I have been hypothyroid for years, without treatment, now the last few months I have been getting better on a lot of symptoms.
I have been checked for sjogren's syndrome, came back negative. My blood sugar and a1c is good also.
Any ideas? Could it still be my thyroid causing this?
I just got my tsh below a 1,and my free t3 is at the top of the range, and free t4 is in the middle of the range.
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