Low Fat Diet - Treatment Of Reactive Arthritis
Sep 2, 2007
I am a woman of 56 and have never been overweight and up to these eleven years ago enjoyed good health.
My first symptoms started eleven years ago whilst on holiday in France. My elbow and knee joints became difficult to move and painful, particularly when carrying shopping. A fortnight later on my return to England the pain had increased, my ankles had started to swell and I felt generally very unwell, not unlike an onset of influenza. My doctor thought it may have been an insect bite and prescribed a course of antibiotics which had no effect. He then tested me for Lyme's Disease and put me on a further two courses of antibiotics, none of which made any difference. The Lyme's Disease test was negative.
By this time, six weeks from the first symptoms I was almost bed-ridden. The joint pains were almost unbearable, I felt itchy all over and isolated little bumps that were extremely painful to touch appeared under my skin, two on my hand and one on my rib bone. After a couple of days they disappeared and I was left with bruises. Some of my knuckle and finger joints were swollen and started to become slightly deformed. I found that I was passing water about every 30 minutes and had pronounced anxieties, insomnia and depression....I had never suffered from depression before. I also started to experience heart flutters and eczema in my ears.
In desperation I began searching (pre-Google days) for clues in some home medical dictionaries. I came across gout and one of the recommendations for managing this affliction was to cut out all rich and fatty food. Although I knew I did not have gout I thought my problem may have been related, particularly with my swollen ankles which by then had turned a rather nasty brown colour. I decided to experiment and immediately cut out cheese, butter, mayonnaise, oils and fatty meats to achieve a very low fat diet.
Within two days I was feeling much better and over the course of the next month I continued with my experiment and found that within about 24 hours of starting on a higher fat diet again my symptoms would begin to return. Over the next four years and after spending a lot of money on private consultations with no diagnosis being given my doctor eventually referred me to the Royal National Hospital for Rheumatic Diseases in Bath. The consultant diagnosed Poly-Reactive Arthritis. I told him about my very low fat diet (under 20 grams a day) which I had been trying. He said if that worked for me I should keep doing it. Subsequently I developed lactose intolerance. Symptoms from this appear two hours after eating any dairy but I have not found any known connection between this and Reactive Arthritis. I also developed problems in my lower back and X-Rays confirmed that this was caused by arthritis. I am unable to lift even fairly light weights and cannot operate a vacuum cleaner without getting severe back pains for a couple of days.
The diagnosis of Reactive Arthritis was six years ago and if I keep to my very low fat diet I am able to lead an almost normal life. However, I now find that in the past year I have had an increasing amount of urological problems such as cystitis and what were though to be bladder infections, although all the urine tests proved negative. I have also been investigated for possible kidney stones but again this has been negative although on one occasion there was blood in the sample. I have found out in the past few days through Google that symptoms like this are often associated with Reactive Arthritis and called Interstitial Cystitis.
Recently I found the web site for the Arthritis Research Campaign which has a very good information booklet on Reactive Arthritis and in an answer to my questions advised me that cutting down on fat can make a difference in most types of arthritis including inflammatory arthritis, particularly saturated fats which can increase pain and inflammation in the body.
They directed me to their information booklet Diet and Arthritis on their web site at www.arc.org.uk. In this publication they recommend concentrating on oils such as olive oil, walnut oil and oil from fatty fish. I thought I would again experiment and only eat the fats they recommended even though I felt sure that too many olives and olive oil dressing would cause a reaction. Twenty four hours after crossing my 20 gram threshold my symptoms reappeared then slowly subsided after I returned to my strict diet.
In all of my research I have not come across any suggestion for treatment of Reactive Arthritis by a low fat diet. I only know that it has worked for me so far.
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I've been taking Sulfasalazine for a couple of months now, my hair thinning, I've put on weight (about 8 lbs) I feel really down a lot of the time and my moods can swing, I'm normally such a cheery person
Anyone else had/got reactive arthritis and taken Sulf to treat it? i had most pain/swelling in my knee's.
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How my joints are left after having reactive arthritis
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Like others here, I've had periodic reactive arthritis since the age of 10. I'm now 33. If you're not into swimming then cycling is in my opinion the best alternative exercise for joints, probably because you're not jarring the joint, or causing undue stress, the same as with swimming. I cycle to work every day, ten mins each way, and it really helps the early morning pain in my knee. The docs say to me 'if it's not causing more pain or swelling then do it.'
My left knee has always been the problem joint and the swelling always impresses even the most experienced orthopaedic specialists. In the past I regularly defied doctors advice and played football once the swelling had subsided enough to make movement comfortable, though the knee is always huge again the next day and has taken a week or so to reduce in size.
I'm now in the middle of another bout of Reactive Arthritis (from food poisoning abroad, which is nearly always the trigger for mine). I was on crutches for 2 weeks, though not hospitalised this time and am not going to risk a set back in recovery so am resisting the urge to play football this season. This arthritis started in April and from experience I'm hoping to see the swelling settle down in the Spring. Takes around a year for me each time. For me the key to getting through is to keep as active as I can with a gradual increase in sports until the swelling reduces completely, while not pushing too hard too soon.
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My sister in law, a very good doctor who has always given me sensible advice when I have asked, suggested I get my CRP checked. CRP is apparently a marker for inflammation in the body, although lupus and rheumatoid arthritis do not always trigger it.
I know I sound like a broken record, but I really think a lot of post-interferon syndrome can be explained by body-wide inflammation - chronic fatigue arises from an inflamed brain; psoriasis is inflamed skin; arthritis is inflamed joints; fibromyalgia is inflamed muscle tissue; vasculitis is inflamed blood vessels, etc.
Our immune systems were amped up by the drugs, and they never settled down again quite right. The drugs induce autoimmune disorders that can effect every system of our body.
If I eat bagels and cream cheese (I love bagels and cream cheese) for two or three days in a row, and throw in a pizza, all my inflammatory symptoms get worse, including depression and fatigue. My ankles swell. My psoriasis gets worse. My joints start aching worse. My fingers start trembling and twitching spastically. I had nothing like this before treatment.
So anyway, if anyone cares to follow this theory, it means eating a non-inflammatory diet - no pizza, no fast food, skip the sugar, read In Defense of Food. The more you want to live, the better you will eat. If anyone cares to follow this theory and is having their blood drawn anyway, be sure and get CRP checked. My sis-in-law says it's very inexpensive test. I'd love to hear of any correlation or thoughts on this subject.
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I'm a 35 year old woman and last year I was diagnosed with Post Streptococcal Reactive Arthritis. I also have ME/CFS which was diagnosed when I was 15 years old.
In July I had sore throat that lasted for 3 weeks and wasn't getting any better so I visited my GP. She thought it was a virus but did a swab anyway. Over the next few days I noticed weakness, pain and swelling in my hands and knees, worse on the right side of my body. The pain got so severe I could not stand or use my hands. I went back to the GP and was told my swab tested positive for strep. I was given a course of penicillin and told to take ibuprofen and co-codamol for the pain. I was also given omeprazole to protect my stomach as I had gastritis a few years ago.
The pain continued for 2 weeks, I had another course of antibiotics but it wasn't helping so I was admitted to hospital where I was diagnosed with Post Streptococcal Reactive Arthritis. I was given stronger antibiotics and painkillers and a steroid injection (kenalog) and discharged. I gradually improved over the next few weeks but then in October I got a chest infection and another throat infection. 3 weeks later the Reactive Arthritis flared up again.
I was referred to a rheumatologist who examined me and said there was nothing wrong with my joints. He did lots of blood tests but they all came back negative except for a borderline strep count. I was discharged back to my GP as the rheumatologist couldn't help me because my arthritis was caused by infections. He said I needed investigations to find out why I was getting so many strep infections. I went to see my GP but she said there is nothing they can do. She said there is nothing wrong with my immune system because my blood tests are normal.
I had another throat infection in January and another in March, both of which lead to reactive arthritis flare ups. I am very fed up of being ill and in pain all the time. The doctors don't seem to be taking me seriously at all and the only treatment I've been given is codeine and paracetamol for the pain.
I would very much appreciate any help or advice. Surely the medical profession can do more than just give me painkillers?
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I notice lot of people talk about treating arthritis but does anyone here have prostatitis due to reactive arthritis or arthritis caused by prostatitis?
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I am about to start Enbrel. I know it's been about for a while, but could anyone tell me what to look out for. What side effects have people had with it? Does it affect your hair? Do you need to watch what you eat and drink? I have had Psoriatic Arthritis for 7 years now and tried everything! Recently had bad flares with skin and joints, so consultant has suggested I try the biologics. Starting Enbrel next week.
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For those that have tried the gluten free diet, how long before you saw results, if any?
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Im reading a book at the moment on how to recover the immune system. It mentions cases where people with RA that have removed gluten and dairy from their diet for 6 months had no indication of RA in their system after 6 -12 months. Sounds too good to be true. Has anyone tried it? I'm going to give it a go, nothing to lose.
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so this has been going on since I was about 13 till now at 17, my ANA goes up and down, I go from normal range and the highest I've gotten was 1/640.
At the moment I'm at 1/360, my symptoms include hot flashes, cold flashes, nausea, cramps, headaches, dizziness, weakness, shaking, knee pain, and gas. I get these episodes where I feel so weak, dizzy, hungery, and shaky that can last a few minutes to days. All my tests came back normal besides connective tissue disease with high ANA and it was speckled, and low vitamin d.
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Do either of these raise blood sugar, diet coke and diet ginger beer sometimes I like a rum with the diet ginger beer (no alcohol in the ginger beer)
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After MRI my diagnosis was "Lots of mileage left, another 10 years, at least!" (I am 75)! Good to hear but still have to be careful going DOWN stairs! Not too bad going up! Some pain now and again. BUT I sometimes get a strange feeling on upper left thigh, (the worst knee), as if it is wet but when I touch the skin it is totally dry! Happens after I have been standing for a couple of hours.Also, sometimes the skin feels sore, but there is no evidence to show. Has anyone had similar feelings?.
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Is anyone able to give us any advice? We are pretty desperate and my dad is just so depressed as he thought he finally got rid of the virus (he got infected while on an operation in a public hospital) and now it is back...
Are there any specialists that you are aware of I could possibly get in contact with?
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A few weeks ago my bf noticed some bumps in his pubic area. He went to the dermatologist and was diagnosed with molluscum contagiosum, which is thankfully not that big of a deal! He got his treated with cryotherapy. Around this time I noticed a few bumps and because of the area they were in, went to an OBGYN for treatment so my bf and I don't keep spreading it to each other. The OB GYN agreed that they were also MC bumps and lightly scraped each one, then applied an acid treatment. That was a few days ago and while the bumps are mostly gone, the skin surrounding each one is dark and almost looks like a scab in color. Is this normal post acid treatment?
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Does anyone here relapse after harvoni treatment?
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I am a fresh graduate and I was looking for a job then found one, I was hired and before I could start they wanted to get my medical result first. They told me I won't be able to get the job anymore since my result in HBsAg was reactive. In the medical it says "3516.26 S/CO; The Cut-Off value reported for this assay cannot be correlated to an end-point titer; rechecked and verified." Is my Hep B chronic? And can I still get a job even though I am now a carrier of this disease? I am really depressed now it's like I've wasted 4 years of studying
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Now I know this indicates theres some sort of inflammation in my body, but I was also reading that birth control could increase the levels of CRP. I was just curious if it could really effect it THAT much. Normal levels are 0-4 and mine are 18...that just seems pretty high.
Im 20 years old and am currently taking ortho tri cyclen, and occasionally take vyvanse and ambien.
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Have suffered from RH for 2 years very badly, it has basically taken over my life.
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I was excited by this discovery but well 8 days in (5000iu) and no improvement. I know it probably takes a lot longer and I'm still going, but I hope it's not just a red herring.
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I am facing HBSAG Reactive infected When Blood donated its was detected as HBSAg Reactive, , and even i didn’t face any symptoms till now.
Last month I have taken check-up with Physician doctor suggest test of Heliogram Complete Test, and its result all are normal and fine ...
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